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Someone's come for my dad.

(161 Posts)
rubylady Tue 22-Mar-16 03:16:16

My dad's in hospital, cancer now spread to lungs and spine, he has fractures on his spine, broken collerbone from a fall and urine and chest infection. I hadn't seen him since he wanted me to back off a bit but he has got in a state since even though he was being looked after by carers. He looks skin and bone, probably not even 6 stone now, he was a nice size all his life but his legs are like pins. It has been a shock because it has happened all at once.

I have had to try to get him a place in a nursing home for end of life care although it doesn't seem like he will be here long now although he is still eating small amounts of like custard and rice pudding. I have provisionally managed to get him a place, it's up to the ward staff now to sort out his discharge and finances.

I had gone to bed but it all keeps going round in my head and I started to get upset so I got back up.

My mum was on the same ward too last week. She was determined to go and see my dad (they divorced 14 years ago), even though he had vomiting and diarrhoea and was being barrier nursed, she still got to see him. Then when she was leaving for home, she kissed him and said goodbye. Very sad but someone lovely. They were married for over 40 years.

Some might know that he has dementia too, so one thing is that the dementia hasn't got that bad that he didn't recognise me or be too forgetful, if you know what I mean. Both terrible diseases. Poor guy couldn't win.

What are nursing homes like? Are they good on end of life care? Saying that, I used to work in one and that one was nice.

A lot of tears, work, mixed emotions, wondering what to do for the best telling people etc., organizing a funeral. Is it ok to inject a little humour into a funeral or should I keep it straight laced? He was always up for a laugh but I wouldn't like to be seen as disrespectful although he would get it.

Gosh, it sucks. No matter what age you are, you still want your parents to be shouting you in for tea and giving you a clip round the ear for being late. X

POGS Wed 06-Apr-16 19:19:03

Hi Ruby

I love your choice of songs, ' I like a nice cup of tea in the morning'. smile

May I join in with all the other posters who have said how pleased they were your dads send off went so well. Now you really must try to look after yourself , as I am sure your dear dad would have wanted you to do.

brew. brew for you and your dad. X

cornergran Wed 06-Apr-16 21:31:19

Thank you for sharing the details of your dad's last journey with us Ruby. You couldn't have done more. Please think of yourself now. Don't be surprised if you are exhausted. Why wouldn't you be? Take care. X

WilmaKnickersfit Wed 06-Apr-16 23:13:52

ruby you did so well. I was crying by the end of your post because it brought back memories of my Dad's funeral nearly 20 years ago. I still miss being able to tell him things that crop up during my every day life and I get feeling you'll be just the same. Talking about him keeps his memory alive and often remark to my husband about something my Dad would have liked. I'm glad you've got your son to share your memories of your Dad with as the years pass.

Your Dad will always be in your heart and you know you were loved. Time to take care of yourself for a bit now. flowers

Bez1989 Thu 07-Apr-16 03:13:29

I hope I dont offend anyone by what Im going to say. sunshine
I think its true that when we lose a loved one and the love bond is very strong, then that loved one is stll close by in spirit, untll
we have recovered from the immediate pain. Thats when we feel the closeness and feel the need to talk to them. So just do that talking for as long as you need to.
A reĺative of mine told me something when I asked him if he ever felt his Mom around him. He said yes especially when after taking a shower hed feel like a towel had slapped him in a friendly way, which was something she did ocassionally in an affectionate way. I thought that was lovely and I could just imagine her doing that.
She was a lovely Mom to her only child in a very understated way.
God Bless you I. Love you and miss you still as our joint Birthdays draw near. XX
flowerswinecupcake

Minder Thu 07-Apr-16 11:03:41

So sorry for you and your family Ruby. My Mum died with cancer 4 years ago and she was reaching out too. It upset me at the time, I didn't know who she was reaching out to, probably my Dad who passed 11 years ago.

My husband has been in a Nursing Home for the last 10 years, he has advanced Alzheimer's. I would prefer him to pass away there rather than in the hospital, the staff are so lovely to him even though he doesn't have a clue who they are, including me, about anything - apart from when there's food around, he opens his mouth for that like a baby bird in a nest. I know he will have someone with him when the time comes. (if I'm not there for any reason) The home is his home and has been for 10 years. When he has to go into hospital, he's always agitated so I stay with him all day but I don't need to at the home because he has the nurses and carers.

I think I waffled rather a lot there - sorry. hmm

Granny23 Thu 07-Apr-16 13:41:51

Ruby You certainly did your Dad proud in spite of all the difficulties. As Cornergran says you will probably feel totally exhausted and drained. Although I am not at all religious or 'spooky', I agree with Bez that our loved ones remain close by in spirit. Perhaps it is the heightened awareness that we feel at the time of births and deaths but I felt my beloved father's presence for month's after his death and again, very strongly, some 15 years later when I first held my newborn Grandson.

More flowers and (((hugs)))

Willow500 Thu 07-Apr-16 16:18:41

Ruby your arrangements sound perfect and I'm so pleased you had that special time to spend with your dad - the items you put in with him were obviously just right for him (we put chocolate buttons amongst other things in with mine as he used to love them). The funeral director in particular seems to have been wonderful and I'm sure helped you get through the very emotional day. I too loved your song choices. I wouldn't give a second thought to your families behaviour - you rose above them and came out dignified and so much better than them - I'm sure your dad would have been very proud of you and your son. Now its time for you to start thinking of yourself and the future flowers

rubylady Fri 08-Apr-16 16:06:47

Thank you all so much I really do appreciate your support.

I've not been on because last night I had an emergency appointment at the doctors. I keep going hot and cold, throat feels like it has two tennis balls in it, headaches, shaking, and chest rattling and coughing.

Doctor gave me antilbiotics, chest and throat infection, reaction I think to everything that has happened.

Today I noticed a rash on my ankles, I checked other places and rashy all over. I feel terrible. I've just ordered some more food on top of my normal order, getting more soups, fresh fruit, vit C, palatable food as I don't want to eat and I haven't had a cup of tea for days.

Has anyone else had a reaction like this after losing someone?

How long until antibiotics kick in?

Xxx

Falconbird Fri 08-Apr-16 19:16:40

Dear Rubylady, flowers

The rash could be an allergic reaction to the antibiotics so best to tell your doctor. I had a reaction like that some years ago.

When my mum passed away I had a double middle ear infection and when my dh passed away I lost two stone in four months because I was forgetting to eat.

Do try to keep up your fluids Ruby - you are really going through it and my heart goes out to you.

I've been given some anti biotics for a chest infection and they took about 24 hours before I felt some relief.

I wish I could find better words to express how I feel for your sadness.

Jalima Fri 08-Apr-16 22:53:48

Is the antibiotic penicillin?

You can develop an allergy to it at any time, so best to check with the GP just in case. It could be part of the viral infection but best to be on the safe side.
flowers