my life has become a nightmare.

As a locally elected councillor this is my advice. Contact your own local councillor or whichever councillor has the post of Cabinet Member for Social Services. You can look this up on your town/borough website and you can e.mail or telephone. Explain your situation and ask them to apply a little pressure to get things moving.

Good luck

Most social workers go into the job thinking/ hoping to make a difference, then discover they can't, and leave in droves..

Taking your mum in, will I am afraid allow all the services to abdicate their responsibilities towards her. If she does get care she will have to contribute to it, unless she is very poor and SS often suggest people buy in their own care from an agency.

I worked along side SS for many years and always thought them rather bungling, and happy to allow the excuse of no money to absolve them of common sense. I have also dealt with dreadful cases of SS insisting people sell their homes to pay for care, when they were wrong......but would not listen, until solicitors became involved.

It seems that now prescriptions for equipment are given and you are left to go and source things from local designated supplier, had this with my dad a couple of years back. My friend with lipodema was discharged from hospital needing special compression hose and SS assessed her as having to pay £56 per week for help with them on a basic state pension.

Do double check anything SS tell you. My daughter who has a severely disabled child is entitled to carer's assessment, been asking for 5 years now. SS is a service stretched thin by funding neglect and not well equipped in the first place, as their training is not what is needed for the work load they face.

I was pleasantly surprised when working with American Social workers how they just got on and sorted stuff out, our team once had a series of meeting to distribute some free Christmas cakes.....

Put yourself first because they will dump it all off on you if they can.

My sisters and I were in this exact position two years ago with my Dad. He had a diagnosis of mixed dementia, but could manage to make his own cup of tea etc. He began falling so we had an alarm fitted and he wore a bracelet with a button to press whenever he needed it. Unfortunately, he would forget to press the button. We also went private and brought in a team of carers from a local and highly recommend agency. They were very good with Dad and he liked all the ladies. The district nurse visited regularly also as he had oedematous lower legs which were prone to leak. We had to get social services help eventually, as he became increasingly difficult to care for. Only my youngest sister lived locally, she was run ragged. It all came to a head that Christmas and we found a lovely nursing home I which he was admitted in the following January. Dad was in such a financial position as to be able to pay for all his care. It was such a relief for my sisters and I to know he was being cared for. Dad passed away in September 2015, he had a good life and was 92 when he died.
Good luck ethel, I hope you get some help soon.

You have to go through your GP and ask for an assessment not social services ,they should offer you six or eight weeks of free care while they decide what level of care she needs. In the mean time arrange meals on wheels at least you know she will get a meal ,and someone will be coming in at some point in the day . I would push the gp for a brain scan this, happend to both my mum and mother in law , both started with falls and went on to develop dementia my mum also had an irregular heartbeat so they could try a 24 hour monitor . I wish I could say everything will be ok ,but from experience its going to be bloody hard and demoralising .

It saddens me to hear that people are not getting the service from SSD that they should - there were (and I am sure are) many SWs whose only wish is to alleviate people's suffering. You may be sure that they like the situation as little as you do.

radicalnan - your comment about solicitors is pertinent - one of the reasons I think SSD were probably happy to see the back of me was that I kept advising people to contact a solicitor - it always opened the door to services and the cash-strapped department did not like it - but I had to ask myself where my loyalties lay.

I once, very unwisely, applied for a team manager job but did not get it - the reason they gave was that I was too concerned about the clients and the workers and insufficiently interested in saving the department money!

It is a fact that SWs sometimes say that the house will have to be sold when that is not the case - this is why a solicitor is a great help.

What a sorry situation - and soul destroying for those SWs who struggle against all the odds to do the right thing.

We had a similar situation with my parents. I was lucky as my brother was also around, although also working full-time. Someone has said above and it's what we did, go to see your employer, be up front and ask either for leave or to be available at short-notice, depending on how far you work away from your mum's house. I would also get her GP practice involved. We did and they sent out a District Nurse (are they still called that nowadays?) who had a lot of common-sense, but, like social workers, had to work within the system. It still took time to get everything sorted, but it did happen. I'd also look into getting a key-safe. We did, but again, it'll need someone other than your mum to be there when it's fitted - more time-off work, sorry. That's why our first task was to see our employers. We were lucky with their understanding. Hope you are too. Good luck.

Luckygirl, I can assure you that the same as happened with social services has happened to education and teaching. I was blessed to be able to get out at the age of 55 after 33 years even though it meant losing a quarter of my pension.

I do not wish to sound uncaring, but I have to say that this is life, and as for you feeling disappontment and tiredness, you remember all the things your Mum did for you in life and get on with it. Explain to your work what has happened, there are very few companies that won't be able to put a plan in place for you until things are sorted, but seriously, you saying 'I never want another Christmas like this' and how gutted you are about wanting time off work, my daughter in law was doing all you are doing from the age of 13.
Her mum suffered severe depression, also had arthritis, could barely walk, and was incoherent in speech, and my DIL was left alone to look after her mum. Barely going to school, barely feeding herself, 7 years she did this alone until age 21 she finally got the help she needed to have her own life. She had to beg for every minute she needed from work, but she did it, because, to quote her 'Who else would care for her with as much as love than a daughter!'
Luckily the lady in question is a lot better these days, and feels terrible for the burden she put upon her young shoulders, but this is what family does. I know its hard, heartbreaking even. I have done this for my parents and step-parents, and it never gets easier. But you shoulder with a smile because one day, it will be us who needs people.
God bless and I truly hope you get everything sorted asap. xxx

Ethel, am so sad you are coping with his now. It's terrible for you and for her.

We have a 97 year old family member who lives 70 miles away in her own home which has now become a 'virtual ward' as she is bedridden. You would think that would give the visiting med staff the authority to tell her carers (who come 4x a day) to do this or that.

WRONG! She needed ear drops to loosen some wax as her hearing was going after the doc called in. He did not leave a scrip for them, so her son bought them and asked the carer to put them in next time. (He did it when there first time). They cannot, back home he had to ring the doctor to get a scrip for OTC ear drops and then advise the carer to apply them. This took 3 days! By then, the drops her son had put in himself had done the job and she didn't need the scrip (but it supposedly is in force if needed next time.)

Time and money wasted... what is the point of a virtual ward if carers cannot even put in ear drops. They change her nappie, wipe her bottom, bathe her, brush her teeth, and do all kinds of things that have more risk than putting in Boots ear drops.

I despair!

Hugs and love to you... it's a tough system.

I ma very sorry to hear of your plight.And what a dreadful Christmas you had! Better luck next year. Is there any other family member who could help? Could you move Mum into your home and gave someone to pop in while you are are at work? Or a retired friend to sit with her? Just till you get an assessment?

You are in work. Your mother lives 20 miles away. Check with your mother if she wants to return home. If she does, you need to contact your employer and agree two weeks off in the New Year either paid or unpaid holiday. Get in touch with Adult Social Care and advise that your mother will be returning home on 2nd Jan. Check if they have an electronic self assessment form on their system and fill it in if they have.

Contact a provider of care in your mother's locality and ask for an assessment on 3rd Jan with their service to start on the following week. Agree that your mother will pay for 1 month until Social services have assessed her and made a financial assessment.

Contact age concern and find out who does the exteral key safe, rails etc. so that you have a plan of action.

Decide if you are going to pay for the service 'Just Checking' or if you want help from SSD to pay.
www.justchecking.co.uk/

Take your mother to her GP and ask her to have it put in her notes that you may accompany her and the GP may talk to you. Get her referred to the local falls clinic.

I am afraid that getting a care package set up for a parent is a full time job. What you can do does depend in part of what income your mother has.

all the very best.

While I have every sympathy for you OP I think you will find that Social Sevices are desperately short staffed due to Local Authority funding cuts and it's not 'red tape'
Could you/your mother afford private agency carers pro tem ?
Is there a neighbour who would have a key/respond to an alarm button ?

I really feel for you. We all love our mums and hospitals know this ....

In the days before rear seat belts my late mother who was about 84, was travelling home from Tesco in a taxi which braked sharply and she was thrown off the back seat .... Resulting in a broken shoulder on the right and a broken arm on the left.

I rush to the hospital and they did the basics and she was discharged.
I guess I was in shock because clearly she was in no fit state to be discharged.

anyway I brought her back to my house. Even getting her into the car was a nightmare ..... Getting her out even worse. When both your arms are strapped to your body ..... Suffice to say it wasn't easy!

She stayed at ours for a couple of months and I managed to get help from the district nurses etc. Social services eventually sent a 'cater' to help with washing .... She lasted about 10 mins ..... Had no idea how to handle a broken shoulder
Pay peanuts get monkeys!

The rest is history except I was now clued up as to how I would react if anything happened to my mum again.

Moving on a few years, now in her 90s, she falls out of bed. By this time we had carers in place and they were unable to get an answer to their morning call

I go round with my key, but door was bolted! The police come and batter the door down .... She's taken to hospital. Stays in a few days and I'm ready for the "she can go home"

Oh No, I say!!!!! I want her assessed by the OTs and I'm taking her nowhere until I see her walk out of here unaided! I won and she spent a few weeks in a retirement home regaining her strength etc. She eventually went home and lived until she was 96 in her own home.

So the moral of this story is you have to pester GPs, social services, whomever to get the help your parent needs. No doubt it's harder these days as bugets are constantly cut.

No fun getting old. So do what you can. Do you have any brothers/sisters who can help.

I just find it sickening that hospitals will discharge very elderly patients when it's patently obvious they can't care for themselves. My poor mother couldn't even lift a cup!

Sorry if this is a miserable tale .... But it did have a happy ending. Wishing you very good luck ?

"smile and get on with it" is not useful advice for someone who has just had a very stressful time and is struggling to even think of how to cope.

etheltbags, if you, or your mother, can possibly pay for a key box to be fitted and for some help to go in, even for a short time, then please do it to take the pressure off you while you make a more permanent arrangement.

'So sorry to read this - how difficult and exhausting for you, and I hope that you are now in the system and will get help quickly. Sadly there are not enough people to help out especially at holiday times, and although some have said social services 'should have 24/7 availability', and I do agree, who is to pay? Nothing is free, and our NI contributions would need to go up dramatically to cover this level of service . I commented on here recently about health tourism; one person said had I got any evidence and another said it was all a myth. A couple of days later the NHS reported in the press that it had written off millions for bills it couldn't recover from people who had arrived, had treatment and then gone home. I have no real axe to grind here except to say that clearly, from this story, more help is needed and faster, but while we are funding surgery and treatment for foreign heath tourists who have contributed nothing, this money is not then going to our own elderly population who have for the most part 'paid their dues' for years.

You've had plenty of advice about social services but having been in the same position I would advise you to establish a few ground rules with Mum. You say she likes to eat about 9. Point out to her that it's unreasonable and if you cracked up she's in real trouble, also anything else you can't cope with. I know you know your mum best but you must think about you too. Been there it's v hard and I feel for you. Best wishes.

I think your comments 're social workers are uncalled for and unfair monica.You can only speak as you find, but I cannot speak too highly of the help we had with my mother in law from Adult Social Care.
I was not a social worker myself but worked in a very senior position in a L.A. and the financial cuts are horrendous. Maybe we should all remember this next time we go to the polls ?
You are 'fortunate' OP in that you are still at work as otherwise yes, you might be regarded as being in a position to be your mother's main carer
You do not say how old she is or what sort of accommmodation she lives in but might it be time to start looking at residential/care homes ?

A cousin, working awkward shifts, was asked while his DM, late 80s, was in hospital after a fall whether he wanted the 24 hour care package for her on discharge. They lived together. The package involved an entry pad at the door and 4 visits by carers including a quick peep into her room during the night. When he said he'd see how it went when she was home he was told best not as it was far easier to implement before discharge. So he agreed to the package. It worked well and she lived at home until she sadly left us at 104. Her carers came to her funeral.
The point I'm longwindedly making is that it is best to make arrangements prior to discharge.

The scadal of elderly peoplebeing discharged from hospital has been well covered in the press recently Again it comes down to budgets My daughter works in the NHS.The pressure to release beds is awful .Better liaison between NHS and Social Care would of course help.

My aunt's council carers always arrived in pairs by car. Mine, poor souls, from a private firm, arrived alone by public transport at 9am and 9pm in the dark and often in horrendous weather. One had such a long journey home I felt like getting her a taxi. I also had extra door keys made which I dished out to willing neighbours as a safety net.

I was a long distance carer for my mum and really understand the problems you are facing. I even wrote a little booklet with suggestions on ways forward. I had to battle to get any sort of help but I found initially that reading up as much as possible on how services operate, what is available in the area etc was useful. Also listing ALL the questions I wanted answered. I don't know about you but when faced with someone from whom I need help when I'm anxious myself my mind goes a complete blank. I also kept records of telephone calls - dates, times, who I spoke to, the outcome etc. This was helpful if I felt I was being fobbed off. I was fortunate to be in a position to organise private care with carers coming to mum's house and meals on wheels [not so easy!]. I also bought a key box myself and a neighbour volunteered to keep an eye out - something which I had to rely on in the later days of mum's life.

At first I found it totally overwhelming. I'm an only child so it was down to me. I was not in the best of health myself at the time. Her GP was hopeless and we had arguments! Not to be recommended.

What I did find helpful - eventually - was to set aside time to deal with mum's affairs on a regular basis. It wasn't always easy as there was often a hiccup to be dealt with asap but it did help my own mental health.

As for work, again I was lucky to be a boss in my own company. However that said I did't want to take advantage and made sure I treated anything that happened to my staff's family in a similar way. I found them very supportive as a result and hopefully they found my support equally helpful.

As you are nearby you will be under a different pressure and that must be overwhelming. My suggestion at this stage is to write everything down; if nothing else it will help to ensure you remain in charge of the situation - and maintain your sanity!

Age Concern might be someone to talk to - an easier alternative perhaps to Social Services in the first instance?

In my area, Age Concern (or are they now called Age UK?)will fit a keysafe for a nominal charge. The best bit being that they send someone to fit it. Think carefully about the position it's to be fitted. ie obvious for carers/ambulance even in the dark but not glaringly obvious from the road. Many people I met preferred the type where you press a button with the code rather than having to slide a cog type thing using your nail until you hit the right number!

I haven't read all the postings.....just the original one. Sorry to hear you've had sch a rough Christmas. Can't have been grand for your mum either. Have you liaised with Age Concern..... We, in Worthing, have Guild Care and they have a day centre..... Have you any day centres in your area......they can cost but can help with all sorts of things and do provide respite. Don't forget, also rest homes can also be used to give you respite. Mind you...even an hotel would do that. Good luck.....wishing you all the best. Xx

If only the powers-that-be would take heed of forums like this, they might see how counterproductive the State's obsession with constant assessment and review can be - not just in social care but throughout the public sector. Forcing workers to focus on meeting notional targets if they want to keep their jobs risks turning them into the robots that could be doing their jobs soon anyway. Surely stifling initiative, integrity and even everyday common sense prevents people from doing their jobs properly? It certainly removes any chance of job satisfaction. All too often "clients" are let down and staff become so stressed that they feel they have no alternative but to leave the profession altogether.

That rant aside, etheltbags1, I do sympathise with your situation. Been there, done that. My story is that I effectively saved my mum's life (twice) after she suffered 2 falls in fairly quick succession when still living alone at the age of 90. Long story, but the first one caused a subdural haematoma that only became evident weeks later, by which time she was in urgent need of a burr-hole drain. Then I realised it was happening again as a result of the 2nd fall, only this time - after I'd had to shout at him to make my voice heard on the first occasion - the GP did listen to me straight away! I finally persuaded my mum to move in with me and my (reluctant) partner, where she survived for 7 more years before finally passing away peacefully in her sleep as she'd always hoped.

But it takes its toll. Please don't let your own health suffer as that will do no one any good. Get help in any way you can. Maybe ask local charities for advice? Perhaps contact the Citizens' Advice Bureau first? And do accept help from neighbours, family, anyone. If we knew where you were, I dare say a few Gransnetters would even offer to pitch in...