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my life has become a nightmare.

(167 Posts)
etheltbags1 Wed 28-Dec-16 10:22:26

on 20th December my mother fell, I got her checked out at A and E and took her home, she kept falling the next day so again we went to A and E, I brought her home with zimmer frames and a high seat. Since then I have been going in early mornings to get her breakfast, returning home to sort out my house then cook her dinner, back home for an hour or so then evening meal, she likes a supper at about 9ish so I go then having ensured she has had 4 lots of painkillers, I fall into bed exhausted. I was looking forward to a break from work instead I feel like I'm working A full time job. Boxing day I brought her to my house but had to move furniture and raise the chair and cart a zimmer along. I rang social services whom I thought would help me but hit a blank wall. I need to get back to work, they have said I cannot have a care worker to visit when I'm at work until I have an assessment, I can have an alarm so if she falls she can buzz for help but if I'm 20 or so miles away I cannot get back to pick her up, they have said I need a box to hold her key so I asked could I have that, guess what I must have another assessment. As she cannot open the door I must either be there or leave the key outside. They cannot fit an alarm for another 10 days, the key box has to wait also. I'm back to square one. If I fall or become ill then I don't know what to do or what my mother will do.
Ive told them I'm at work tomorrow and leaving the door open until 8 oclock, I have no choice. What a terrible system, this is what shes paid for all her life, having worked and paid her dues.
I feel Christmas has passed my by, cooking and carrying dinner, eating it in a different house I couldn't relax. I never want another Christmas like that again I will book a meal out, alone if I have to. any advice is welcome about how to get social services to put common sense in front of red tape.

ajanela Thu 29-Dec-16 13:04:10

I support all the good things said about social services and they are doing their best in difficult times. What they provide for free compared to other countries where people also contribute is very good.

If we have elderly relatives we have to realise they might have accidents and illness in the same way that those who work and have children do. Ethelbags I am not sure if you have family at home to look after or you live on your own. If you are on your own would it not have been easier to move in with your mum for a few days rather than all this driving.or is there a family member who could stay some nights until this is sorted.

Unfortunately this all happened at a time of year when the UK seems to close down and run on a skeleton staff and every body wants to take time off to be with family and have a rest. So a normally tight service is stretched even further.

Don't worry about what will happen if you fall or get ill until it happens. You managed to move the furniture etc on Boxing Day so think positively about your abilities. I think the stress of the situation is not helping, take one day at a time. Follow the advice given on this page, go to her doctor. Hurry up January 2nd when things will hopefully start returning to normal.

Good luck.

Janet14 Thu 29-Dec-16 13:16:39

Once again same problem but I saw gp who agreed to sign me off sick until we sorted things out....I was stressed out, can you stay at your mum's for a couple of nights? And is it time to look at longer term care?
It's a miserable time so my heart is with you, my mum has now died but I will never forget the feelings of helplessness which ensued my dad's death, sadly limited help is there but it's hard to get, remember to think of your needs in all this....you areally entitled to a carers assessment as well.
Good luck

nancyma Thu 29-Dec-16 13:30:32

Do hope you are getting some support from friends and family and make sure your gp is visited. Sadly social services are inadequately funded and being a social worker is no fun at all. If services were funded properly you and your mum wouldn't face the difficulties you currently experience. Of course when you are facing such a traumatic time social services can become the enemy. One thing I would suggest is to go to your local MPs surgery and demand that they intervene and that they lobby for more funds. Equally if you are a member of a church etc, age concern ask for volunteer help I hope everything works out for you and your mum and that your employers are supportive. It isn't personal it's just that services are at breaking point.

harrigran Thu 29-Dec-16 13:34:11

My thoughts are with you ethel, knowing how seriously ill you have been you should not have to cope with this on your own.

chrislou Thu 29-Dec-16 13:55:49

I agree with mumofbadboys contact your GP asap their system should help you access services more readily. Social Services do have to do assessments and yes it takes a bit of time but can fully understand your frustration. Is there not a neighbour who could go on the call bell list or pop in to see if all is ok once a day until you have more regular help?

pollyanna56 Thu 29-Dec-16 14:25:35

Sorry that you feel that way about S/Workers. They do care, but are struggling to cope with under-funding, not enough of them, and being demoralised at every turn by the opinions of people who only see one side of the coin.
I have been a s/worker, and have been a service user both for my MIL, and for myself.
In order to get the care that you needed, you should have told the AE dept, that you could not take your mother home, as there was no care available for her. Sadly, this would have meant that she would have been in Hosp. over the Christmas period, but she would have been in the system, and would have been sorted eventually [along with the hundreds of other elderly people vying for the small amount of money available] Once assessed, she would [depending on her ability both to function, and to pay] been found the care which was deemed 'correct' If this was deemed enough to have daily/twice/3 times a day visits, that would have been put in place,[plus a statuary financial contribution from her], if she needed more care, then her finances again would be assessed, and sorted accordingly. This means that property, money, bank accounts will be sold/emptied, until either she gets down to the basic money allowed, or she dies. This is how it is. Sadly you do seem to have a very idealist & naïve view of life, from what you had written it was almost as if having rung SS on Christmas Eve/Day/Boxing day, you expected someone to be just waiting to take your call, instantly sort out your problem, and say, 'all done now, go off and enjoy your Christmas?' Get real. You are expecting to have a life after work, s/workers also have a life, and possibly families, which they organise, in order to go and try to help someone else sort out their lives/families/parents/children. They are not sitting just waiting for a phone call, the are too busy sorting out the people already in the system. however, see your GP, rrange an assessment, & Take a day off, in the short term you could buy a keybox, you could look at care agencies, whilst you are waiting, failing that, ext time your parent has a fall, call the ambulance, and then leave it to AE to sort her out, and say you cannot care for her yourself, as you are in full time work/cannot manage/have time off/etc, then as has been mentioned before she will be in the system, and will work her way through with the help of s/services/social workers. This is not being cruel, it is being realistic.
I usually feel that most people balk at the bit about finances' seeming to feel that there should be an 'inheritance' of sorts left at the end of it all?

durhamjen Thu 29-Dec-16 14:28:55

www.theguardian.com/society/2016/dec/28/third-of-councils-to-lose-cash-in-social-care-changes-says-burnham

Going to be even less help soon.

Reading all this, it makes me feel grateful that everything was arranged through the hospital and GP when my husband came out of hospital after having his brain tumour operation. I wouldn't have had a clue.
It was only a week before he died that I was asked who his social worker was. Didn't have one. How did he get all this help without one, I was asked. No idea, but I'm glad it was there for the last three months of his life.

aggie Thu 29-Dec-16 14:31:23

Sorry Pollyanna I find your post quite hurtful , Ethel is at the end of her tether and you tell her to get real ? I struggled with OH for months till eventually he was admitted to Hospital , I had no idea of the help on offer and found most people have no access to information till they are at breaking point

VIOLETTE Thu 29-Dec-16 14:41:19

Pollyanna you may well be right, but I think that the original post was for understand, sympathy and advice ,,,,and I hope she gets that ! Having worked in the NHS the problem of bed blocking was even then (15 years ago) serious, Our first port of call was always the family ,,,but most could not or did not want to take the elderly person into their home, so an ADL was asked for from the hospital Occ. Therapists who would visit the home and see what activites the person could perform ..i.e. dress, wash, make tea etc etc ,,and help may or may not be offered accordingly,

This has been constantly in the news of late and is getting more serious by the day ....see you MP, go to the CAB, Age UK, any other organisations for elderly people in your area (local paper may have a list, or the library) you will certainly not be alone in this problem, sad as it is !....if it would help you and you could afford it, it might be worth considering employing your own carer for a few hours a day and/or overnight ..but if you go down the private route they will not have gone through the police checks that an agency should have done before employing someone.

My dear dad refused to come an live with me even though he was on his own some 250 miles from me ,,,,the reason ? 'your daughter talks too much' ..(she was 4 then !) and he preferred to remain in his retirement flat ... and \I would keep in touch every day by phone after work (then he would say 'what do you want ? Im trying to watch football !) ..but at least then I knew he was ok !

Unfortunately he had a fall one day and luckily he pulled his emergency cord and help arrived and took him to hospital ,,who phoned to let me know so I could go and see him ....afterwards all he said was 'they broke my front door' .....! but he was lovely ...independent but refused help ! In the end he died of pneumonia probably because he kept the flat like an ice box, despite having more than enough money from the sale of the family home ,,,,every time I visited I urged him to turn up the heating ,,,we all knew he could easily afford it,,,,but he said he wasn't cold ! My brother or I used to turn it up, knowing as soon as we left it would be turned off again !

It is a very worrying time for you but after you have talked it over with other family members, neighbours friends, all the people mentioned on here and worked out where to go from here it will get a little easier and a little less upsetting for you, I wish you well ! Bon courage !

Jalima Thu 29-Dec-16 14:42:37

pollyanna possibly you do not know anything about Ethel's mother and Ethel herself, about their financial situation, their health other than what ethel has posted in the OP about her mother, so perhaps saying I usually feel that most people balk at the bit about finances' seeming to feel that there should be an 'inheritance' of sorts left at the end of it all? could be a bit presumptuous?

ethel I know how you have suffered with your health and what a struggle it has been to get back to work, not always easy to have a day off I know. I was so lucky with my boss when I had my DM dependent on me, he could not have been kinder. I did have to make up any time I had off but my hours were flexible and I worked near home, which I know you do not. I also had teenagers still at home who could keep an eye on Mum when I could not.

If only we know about these things, eg not taking someone home from hospital, (which does seem unkind at the time), but perhaps is the only way to get the help required - then we can act accordingly.

Best wishes

Jalima Thu 29-Dec-16 14:43:40

sorry, pollyanna not pollyanna

Jalima Thu 29-Dec-16 14:49:43

Violette my MIL refused much help - she should really have gone into sheltered housing or residential care but absolutely refused, not wanting to spend all her time with 'old people' (she was 87 when she died!). We lived 150 miles away, other relatives nearer but it was such a worry.
I offered to have her to live with us as my DM had, but she refused and in fact she and DH used to argue so it was probably for the best.
She did have a home help and then someone to go in and help her get dressed and again put her to bed in the evening but we worried about her all the time.

margrete Thu 29-Dec-16 14:53:16

Our experiences are the reverse of the OP's and her mum, although we are - ahem - 'elderly people' i.e we shan't see our 80th birthdays again.

DH has been in hospital recently. He was meant to have a revision of knee replacement, the 4th or 5th on the same leg. Prosthesis was removed but blood infection markers too high to do further surgery. IV infusions of antibiotics 3 x day, daily blood-tests. 4 weeks later, it was decided he was 'medically fit' to come home. Cue entry of SS/rehab/discharge co-ordinator with insistence of a 'care package' for him, plus zimmer and commode.

DH is a highly-intelligent guy who is used to making his own decisions. He, and I, said that we didn't want the 'care package' nor did we want the commode. Repeatedly! To various different people. Useless. We weren't listened to.

A rehab man even visited our home - a 2-bed bungalow with mobility-standard bathroom, shower with walk, in access, higher loo seat. He opined that DH wouldn't be able to get into the bathroom and would need one carer 4 x daily.

DH's discharge was delayed because of transport problems - due to having no joint in L leg he had to have a stretcher, not a chair, so that leg could be kept straight in transit. That afternoon I took a call from the county Social Care department about the 'care package' they'd been asked to set up. I explained kindly that we did not want it. The very first person to listen!

I was left with a phone number to call in case we found we DID need the carer 4 x day. DH arrived home the next day by private ambulance.

Very quickly, a letter arrived from the county SS dept saying they were sending out a named person to do a financial assessment for the care package DH was getting. He phoned and cancelled this, as he wasn't getting any such package. Couple of days later, another letter arrived saying that as he'd cancelled the visit he'd now be charged full price from the 23rd. Cue irate phone call from him - nothing further been said. 4 x visits x 7 would have cost him £225 a week.

The tall African-looking social worker on the ward said to me 'We'll only take half your joint account'. She obviously had some sort of pre-conceived idea about the way 'our generation' manages its money. I said to her 'Good luck with that. Our joint account exists only to pay bills, is funded on the 28th but is almost empty by the first few days of the month'. And no one can get into anyone's bank accounts unless they are given explicit permission!

Since then, DH has been coping with my help, visited 2 x weekly by the District Nurses to dress a wound on his leg. We managed to get rid of the commode but only after a few phone calls and a threat to send it down the tip if not collected.

DH took a phone call from a consultant surgeon in Oxford who does joint reconstructions not just revisions. He wanted to see DH in his clinic before Christmas. Following that, DH is on his waiting-list for surgery maybe Feb/March. And we soldier on!

What annoyed me more than anything was the assumptions these people had, that they could over-ride our own choices, decisions and lifestyle. What gives them that right?

annemac101 Thu 29-Dec-16 15:09:54

The first thing I would do is buy a key case online they're not expensive then that will let the people who need to go in get in. We had to do that for MIL as were told to get one and not offered it for free. Next you have to see the GP with mum or call him out. Tell him you have to work and a care packaged will have to be set in place as an emergency while assessment is waiting to be done. My MIL was taken into hospital after a stroke of which she had many. I had found a care home for her but Social worker said another assessment had to be done even although a home assessment had been done a few weeks before and I was told to go and look at care homes. It took eight weeks to have assessment done and that poor woman was in hospital bed blocking over Christmas and new year when a room was waiting for her in a care home five minutes from where we lived and could visit everyday. Nothing would move them and believe me we fought as hard as we could. The problem was that the home assessment social workers don't share their information with hospital social workers. How stupid is that in these days where computers are everywhere. No compassion. I wish you and your mum well but be prepared to shout the loudest to get any help.

Jalima Thu 29-Dec-16 15:14:28

What annoyed me more than anything was the assumptions these people had, that they could over-ride our own choices, decisions and lifestyle. What gives them that right?
Margrete that is a worrying aspect in fact - that social workers can take control of an elderly person against the wishes of their family, that the Family Courts can impose prison sentences on family members who are desperately trying to help their elderly relatives which social workers believe may not be in the best interests of that person even though the person and the family may not agree with the social workers about the best way forward.
And there is an absolute blanket of silence about the cases.

That is truly scary.

Jalima Thu 29-Dec-16 15:18:18

An elderly relative was taken to hospital and they wanted to discharge her (a dementia patient) into the care of her 98 year old DH until relatives objected. They have no surviving DC, so she was 'a bed blocker' until a place was found in a care home a good distance from her own home with the promise of a move nearer home if a place became available, which never happened.

BlueBelle Thu 29-Dec-16 15:20:52

I do think we all expect too much of our system it cannot help everyone at a minutes notice over a bank holiday weekend They will help but we do have to help our elderly ourselves and if that means calling on voluntary help family/ friends/ neighbours on a temporary basis in an emergency while it all gets into the system then what more can we expect I was an only child and can totally understand how difficult it is to get everything in place and juggle all the balls needed at the same time
I m sorry to hear you yourself are unwell Ethel and can imagine how this on top of whatever is your own problems was a step too far you're obviously very disappointed you didn't get the rest you needed over Christmas and stressed too I hope you can call on some family or friends to give you a hand while the much needed help is organised

FarNorth Thu 29-Dec-16 15:29:13

Even with help from relatives/friends, most people have no idea how to cope with someone who has mobility problems and/or dementia or other health conditions. Trying to cope, without proper advice or help, could harm the person or themselves.

Jalima Thu 29-Dec-16 15:29:16

ethel I think you need to get your GP to visit or try to take your mother to see him if she keeps falling. She could be having TIAs

margrete Thu 29-Dec-16 15:41:31

Jalima, you mention 'wishes of the family'. The family did not come into it! All our family members are at the other end of the country - Warrington, Derby, Yorkshire. It was DH's own wishes and I backed him up because I know the man - know the determination and the history behind what he's going through at the moment, which others do not. He also, surprisingly, has a lot of upper body strength from an athletic and healthy youth. Looking at him purely from the point of view of his date of birth is misleading in the extreme, and all those people fell into that trap. We have also been in senior positions and used to decision-making.

My stay in hospital for the hip revision was very brief, but even so, I was 'assessed' in hospital. 'Have you a key-safe (what's that?) or a commode - no' . Assumptions being made, again!

Luckygirl Thu 29-Dec-16 15:58:29

Well - they can't win! If they offer help they are taking over and making assumptions; if they offer nothing they are uninterested and hard hearted!!

BlueBelle Thu 29-Dec-16 16:19:18

Farnorth my post was in answer to the fact that the key safe couldn't be put in the same day so maybe neighbours or relatives ( if there are any) can help temporarily I wasn't expecting neighbours or relatives to give medical help The lady had been sent home with obviously temporary equipment for mobility hi risers frames etc so not left with no mobility help .....there is no mention in the OP of the mother having dementia
As it's seems there would be a 10 day wait for things to get moving it seems prudent to try and get some voluntary help while Ethel is at work for those few days or of course as suggested already get a doctor to sign her off work for two weeks so she can give her Mum help without stressing herself so much

GillT57 Thu 29-Dec-16 16:42:42

margrete while your irritation at what you see as meddling by SS is a bit understandable, just read the other posts on here and perhaps you will be more understanding and sympathetic. Social workers are stuck between a rock and a hard place, working with strict financial restraints and often with people who are somewhat resentful of the fact that they need help. A key safe is a good idea, and although you are obviously managing well, your fierce independance could lead to difficulties if one of you does have a fall or incident,and small incidents can soon escalate into major emergencies. Ethel get a key safe sorted, tell your Mother that you cannot run backwards and forwards at meal times which suit her, you too have a life and are entitled to look after your own health, especially with the problems you have had this year. It will benefit nobody if you end up ill again.

f77ms Thu 29-Dec-16 16:47:12

ethel I was in the same position as you are now so have some experience . The assessments do take a while to organise but once it is done you will get some help , don`t get too excited though because it is much reduced in recent years by this present government . You will possibly get someone calling in for 15 minutes 3 times a day , I didn`t find it much help to be honest as there were so many things they were not allowed to do ie lifting , getting my Mum onto the toilet etc etc . All the things I needed them to do in fact ! I assume that you will take your Mum to the GP to find the cause of her falls , maybe they can point you in the right direction with help for her . You sound as if you are a bit overwhelmed by it all ? Your Mum must be feeling anxious and upset by what is happening too , are there any other siblings to help . Is there any chance of you having some time off work , either on compassionate grounds or as holidays ? Your Mum is probably aware of your unhappiness/ tiredness and feels guilty herself . It is a difficult situation and you may have to make a lot of compromises but things will get easier and you will be glad you looked after your Mum when she needed you flowers

f77ms Thu 29-Dec-16 16:55:36

ethel have I misunderstood ? I assumed your Mum was staying with you or was it just boxing day?