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my life has become a nightmare.

(167 Posts)
etheltbags1 Wed 28-Dec-16 10:22:26

on 20th December my mother fell, I got her checked out at A and E and took her home, she kept falling the next day so again we went to A and E, I brought her home with zimmer frames and a high seat. Since then I have been going in early mornings to get her breakfast, returning home to sort out my house then cook her dinner, back home for an hour or so then evening meal, she likes a supper at about 9ish so I go then having ensured she has had 4 lots of painkillers, I fall into bed exhausted. I was looking forward to a break from work instead I feel like I'm working A full time job. Boxing day I brought her to my house but had to move furniture and raise the chair and cart a zimmer along. I rang social services whom I thought would help me but hit a blank wall. I need to get back to work, they have said I cannot have a care worker to visit when I'm at work until I have an assessment, I can have an alarm so if she falls she can buzz for help but if I'm 20 or so miles away I cannot get back to pick her up, they have said I need a box to hold her key so I asked could I have that, guess what I must have another assessment. As she cannot open the door I must either be there or leave the key outside. They cannot fit an alarm for another 10 days, the key box has to wait also. I'm back to square one. If I fall or become ill then I don't know what to do or what my mother will do.
Ive told them I'm at work tomorrow and leaving the door open until 8 oclock, I have no choice. What a terrible system, this is what shes paid for all her life, having worked and paid her dues.
I feel Christmas has passed my by, cooking and carrying dinner, eating it in a different house I couldn't relax. I never want another Christmas like that again I will book a meal out, alone if I have to. any advice is welcome about how to get social services to put common sense in front of red tape.

etheltbags1 Sat 14-Jan-17 21:42:53

ANA, I don't want to be like this, I want to do this sort of thing with no qualms but I'm not a sensible calm, get on with it sort of person. Some days I can cope othr days I can't

. At the minute my mother is dealing with her own personal stuff. I haven't done anything other than shop and small tasks for the last few days. See my other post, a relative has offered me a holiday so I'm looking forward to it.

etheltbags1 Sat 28-Jan-17 22:14:26

My mother is much better and can do most of her usual tasks but she can't go out yet and I know she loves to go out, I asked her again tonight , saying that perhaps she could get her physio to help her out of the step and practice. She said she wouldn't ask and when I asked her why I she said she wouldn't say because I would put my own interpretation on it so she is just going to agree with me regardless. Such a nasty thing to say to a serious suggestion. I had made her tea, she grumbled it was greasy, no thanks, I did dishes and went home. I know now that She will never be nice to me again, the lovely person she used to be has gone. There is no sign of altzheimers she can do her bank accounts and pay bills etc, i think that geing alone makes her brood, i cant stsy more than an hour as we end up arguing. Why cant i get along with an old lady am I such a horrid person, I've no self confidence left, I've had my weight remarked upon, my uselessness and my forgetfulness and that's just today. Sorry I needs a moan

MissAdventure Sun 29-Jan-17 09:07:05

Ethel,
I looked after my mum, and faced similar, although she too didn't have dementia.
She would struggle to do things herself, flatly refusing to ask her carers (who flew in the back door and out of the front)
I dont know what caused her to be so unpleasant at times, but it was soul destroying.
I'm so sorry yours having a hard time of it, but know that others do understand, and that you're doing your best in a hard situation.

Stansgran Sun 29-Jan-17 12:32:37

Ethelbags by doing what you are doing in the face of her obstreperous ness if that's a word, then you are a saint. Buy earplugs or head phones and as soon as she says something horrid but while you've still got stuff to do for her,bring them out ostentatiously and say if you're going to be rude I'm wearing these.

FarNorth Sun 29-Jan-17 13:22:35

ethel I think your mother feels a bit out of control of her own life, which is not surprising in the circumstances.
Possibly she feels that she is now a burden to you and that you might resent her needing help.
She could be retaliating to that by making rude comments to you, which is not okay of course, but understandable.

Maybe at a time when you are both calm, you could say something about what a lovely mother she has been and ask her why she sometimes says rude things to you now?

GillT57 Sun 29-Jan-17 14:41:55

Poor Ethel everyone is making excuses for her Mother, saying it may be early dementia/loss of control/fear etc etc. Maybe she is just a nasty old woman who bullies her daughter. You have been a marvel ethel, and I for one, don't think that being old gives you permission to be nasty to people, especially family who are trying hard to help and in your case ethel are recovering from major illness themselves. Just do what suits you because you will never suit your Mother, you have said previously that your she has a history of belittling and criticising you, well she is unlikely to change now so do what is needed, get the carers in, make your visits social rather than care, and hopefully you will both get more satisfaction.

NfkDumpling Sun 29-Jan-17 14:46:36

It seems to be a common thing for mums to take out on their daughters their frustration at getting old, infirm and no longer able to cope. Mine did. As did a couple of my friends. We formed a local group of AAARGH ( Aged, Awkward, Argumentative Relatives Group Help). The rule was that we would support each other, have a good moan and winge about our Beloved Relative, and never, ever repeat it. Only one friend had a problem dad, it seems to be a much more common condition with mums!

We were also able to share help on how to get benefits and help, and little ploys which worked. (Crying for instance!) Perhaps if you could persuade your mum to attend a local coffee morning for older people with you going with her? You may meet a fellow AAARGH member and/or set up your own group?

NfkDumpling Sun 29-Jan-17 14:53:54

Once, when my mother had been really, really horrible, my DD2 realised and gave me the airline advice. "Always fasten your own oxygen mask before helping others". You must look after yourself first Ethel or you won't be in any condition to care for anyone. Never, ever feel guilty to have a bit of 'Me time' or staying away if you can't face it.

DD2 was the only one apart from me who'd ever been on the receiving end of mum's ire. She was always the sweetest of old ladies as far as anyone else knew.

Jalima Sun 29-Jan-17 15:22:28

My friend's mother was horrible to her despite all the loving care my friend and her husband gave her, putting their own retirement on hold. Sister who lived abroad was wonderful of course. And she was always absolutely lovely to me.

There is another thread about this, not sure if you have seen it ethel, in fact several threads about cantankerous mothers.
Are your mother's friends still visiting her or can you get her out to see them and leave her with them for a while, or to a Day Centre?

etheltbags1 Thu 02-Feb-17 18:22:54

She is going to ask for help in getting outside, then I can take her out which she would like.

etheltbags1 Sun 19-Feb-17 21:47:58

Update, my brave, annoying, tough mother came to my house herself the first time out since December, she is puttering around with no Zimmer, she does not let us help her,apart from shopping, she does her housework and is hoping to start her voluntary work soon . Doubt I will be that tough at 85.

MawBroon Sun 19-Feb-17 21:51:32

She sounds like a tough cookie. Perhaps she might like to be friends with kittylester's mum!

NfkDumpling Sun 19-Feb-17 21:57:17

I bet you will be just as tough Ethel. Just more understanding and sweet natured.

Jalima Sun 19-Feb-17 23:52:32

I'm pleased to hear that etheltbags

Perhaps it's being contrary that keeps her going smile
My MIL used to say 'I like being awkward'.

etheltbags1 Thu 23-Feb-17 21:57:21

Now she is chuffed she has done her grocery shopping online and unpacked it herself, though I did offer to help. (JUST annoyed that I can't get onto the shopping site without help), these older folk are just getting too clever.

Jalima Fri 24-Feb-17 00:14:23

Brilliant!
I have been trying to persuade my sisIL (who is in her 80s) to become computer literate and do her shopping online, but in vain.