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OH now on end-of-life care.

(520 Posts)
Luckygirl Fri 24-Jan-20 17:10:07

OH in nursing hone with end-stage PD, and he has been in terrible mental stress with paranoia on top of his total physical helplessness. He shot a temperature yesterday and clearly has some sort of infection - probably chest. I opted for him not to go to hospital, as I know this is what he wants. They are trying (and failing) to get oral antibiotics down, and have scratched all meds non-essential for his comfort . We just want him to go in peace now. But he is intermittently awake and in distress that he cannot articulate. They have all the necessary drugs for palliative care.

I am torn between wanting to keep him and wanting him to just go now so his distress is over. It is a torment

lavenderzen Tue 18-Feb-20 19:02:06

Thinking of you tomorrow Lucky. You are not a wimp you just need a helping hand that is all flowers

Marmight Tue 18-Feb-20 19:03:32

Not at all Lucky. I couldn't do it either so asked our Minister to read on my behalf. My girls, much as they wanted to, couldn't read either so a friend stepped in. You will get through tomorrow head held high. I found it easier than I’d anticipated, surrounded by family friends and many others, who were all there supporting us. We’ll all be with you in spirit and holding you in our hearts ❤️

cornergran Tue 18-Feb-20 19:04:46

flowers luckygirl and scribbles. Love to you both. My thoughts will be with you tomorrow luckygirl. Your words and thoughts will be expressed through your son in law, no certainly not a wimp, sensible it seems to me.

MawB Tue 18-Feb-20 19:05:13

Very wise decision Luckygirl - I have seen too many people overcome by their emotions, one being a retired vicar friend who thought he could conduct his late wife’s funeral. He said it was “the last thing he could do for her”
Poor man, he could not hold it together and another mutual friend, also a priest, had to take over.
It also gives your SIL a role in the proceedings which is nice. He will appreciate being included.
Our DDs all did readings and the SILS were among the pallbearers going into the church.
(I said I didn’t want them to do it coming out as I felt their wives might need their support)
My 2 older grandsons (8 and 6) held my hands going in, which was very sweet of them.
You will be very much in my thoughts tomorrow - it’s not going to be easy, but it will be worth it to also enable others to express their feelings for your dear DH.
flowersflowers

Marydoll Tue 18-Feb-20 19:05:58

Another one wishing you well for tomorrow Luckygirl.?

Bathsheba Tue 18-Feb-20 19:09:20

I shall be thinking of you Lucky. I hope you feel better and the feeling of nausea passes before tomorrow. You will get through this, you have a lot of support from family and friends, and all of us here will be virtually holding your hand. flowers

BlueSky Tue 18-Feb-20 19:22:05

Lucky neither my DH or myself felt we could read at my MIL's funeral so we put together some memories of her life and the vicar read them out during the service. You would be expecting the impossible if you thought you could do it. flowers

BBbevan Tue 18-Feb-20 19:47:20

Me too Lucky. God bless.

BlueSapphire Tue 18-Feb-20 21:48:43

Have only just caught up with this thread, Luckygirl, and will be thinking of you tomorrow. Wishing you well and sending love.

kittylester Tue 18-Feb-20 21:50:20

scribbles flowers

Lucky thinking of you and your family tomorrow.

gillybob Tue 18-Feb-20 21:53:39

I too will be thinking about you tomorrow Lucky . Sending you much love and strength xx

Ginny42 Tue 18-Feb-20 22:08:29

Bless you Lucky, you're not a wimp at all. You have been so brave for so long. My thoughts will be with you and your family tomorrow. xx

Scribbles warm wishes to you at this sad time. {flowers]

grannyqueenie Tue 18-Feb-20 22:34:12

lucky, there’s nothing at all wimpy in being brave enough to know your own limitations. Thinking of you flowers for tomorrow and you too scribbles flowers in these sad times for you both. xx

paddyanne Tue 18-Feb-20 22:38:15

I dont think its fair to ask the nearest and dearest to speak and I dont like the "line up " to shake hands .You do what you feel you can its your decision and nothing wimpy about it.I'll light a candle in the morning for you and your family .Wishing you strength and peace

Callistemon Tue 18-Feb-20 22:43:42

Wishing you strength for tomorrow Luckygirl flowers

And for Scribbles too flowers

Calpurnia Tue 18-Feb-20 23:07:03

I will be, with all of us thinking about you tomorrow and your lovely family Luckygirl. As others have said you did your very best for your dear husband and when the going got tough you were there for him. I know he will be proud of you all. I hope the day will not be too stressful for you, please remember, and you must believe that you were the kindest and caring of wives. You did everything, and a lot more, to make sure your husband was safe and cared for- even though there were many times when it caused you a lot of heartache, but you never gave up on him. Who could ask for more?

We will all be with you in spirit tomorrow Luckygirl. You have been an inspiration to me as I help my husband towards his end of life care.

Dollymac Tue 18-Feb-20 23:12:42

I am so sorry to hear your very sad news Lucky
I will think about you and your family tomorrow ?

callgirl1 Wed 19-Feb-20 00:18:42

I have been wondering how you were getting on Scribbles, well done for getting through Friday, all the best to you and your daughter.
Luckygirl, I`m another who will be with you in spirit tomorrow. It will be hard, but you will cope, especially being surrounded by the love of your family.

mumofmadboys Wed 19-Feb-20 00:25:10

Hoping tomorrow's service gives you comfort and a sense of peace. Also hope the physical symptoms settle and you start to feel a bit stronger. There will be an army of GNers thinking of you.xx

Kalu Wed 19-Feb-20 00:37:10

Sending you strength for the day ahead Lucky. My thoughts will be with you

Scribbles ?

Curlywhirly Wed 19-Feb-20 07:29:32

Luckygirl thinking of you today, hope the service goes well. Take care.

Sar53 Wed 19-Feb-20 07:36:27

Thinking of you today Luckygirl and flowers for Scribbles. Much love xxx

Alygran Wed 19-Feb-20 08:18:40

flowers for you today Luckygirl
My DD spoke at her Dad’s funeral and DGS, then 8, held my hand as we walked in.

dragonfly46 Wed 19-Feb-20 08:21:22

Thinking of you today Lucky flowers

Bellanonna Wed 19-Feb-20 08:52:20

Lucky ?