Gransnet forums

Health

OH now on end-of-life care.

(520 Posts)
Luckygirl Fri 24-Jan-20 17:10:07

OH in nursing hone with end-stage PD, and he has been in terrible mental stress with paranoia on top of his total physical helplessness. He shot a temperature yesterday and clearly has some sort of infection - probably chest. I opted for him not to go to hospital, as I know this is what he wants. They are trying (and failing) to get oral antibiotics down, and have scratched all meds non-essential for his comfort . We just want him to go in peace now. But he is intermittently awake and in distress that he cannot articulate. They have all the necessary drugs for palliative care.

I am torn between wanting to keep him and wanting him to just go now so his distress is over. It is a torment

grannyqueenie Fri 24-Jan-20 23:34:30

luckygirl I’m so sad to read this. You’ve been losing your much loved man bit by bit, I hope knowing you've given him your very best helps just a bit. Thinking of you and hoping so much that somewhere in it all there’s peace. x

Evie64 Fri 24-Jan-20 23:35:23

Oh Luckygirl, you poor love. I really feel for you. How dreadful. Can you ask the nurses to give him more painkillers/morphine? My friends mum passed very peacefully after the palliative care home nursing team administered morphine. Thinking of you xx

cornergran Fri 24-Jan-20 23:37:11

Thinking of you both lucky and your family. I’m so sorry, such a hard time and for you too scribbles. Sending love although that seems inadequate.

fatgran57 Sat 25-Jan-20 00:20:25

So sorry.

PageTurner Sat 25-Jan-20 03:16:53

My hope is that your OH will be at peace very soon.
I've followed your story and felt so sorry for you both.
Yours seems to be a very loving family, and you can draw strength from each other to help your dear husband and father to pass peacefully, knowing he was loved.
Thinking of you all?

PageTurner Sat 25-Jan-20 03:19:21

Scribbles
My deepest condolences to you and your family.
Take care and be strong.?

gmarie Sat 25-Jan-20 07:35:22

Have you and your family in my heart and thoughts tonight. flowers flowers flowers

kittylester Sat 25-Jan-20 07:38:15

Morning lucky and scribbles (and glamma if you look in) Hope you are all as well as can be.

Alygran Sat 25-Jan-20 07:56:29

Luckygirl I am so sorry to read this. Wishing you strength, courage and peace. flowers.

Sparkling Sat 25-Jan-20 08:36:24

So very sorry Luckygirl. It is such a dreadful experience seeing your loved one in such pain and distress, I used to wish it was me instead. I look back and know I did my best and he was surrounded with love to the end. I wish you strength and courage at this awful time. ?

Auntieflo Sat 25-Jan-20 08:43:36

Oh Lucky, I was so sorry to read this. You have been on a long hard journey, done everything possible for his care and comfort, but you know what your DH wants.
Also to Scribbles and Glamma, condolences.
Love and prayers to all who have gone through this journey.
flowers

annsixty Sat 25-Jan-20 09:19:20

Kindest thoughts to you and your family Luckygirl
Having been on your journey so recently I know how it is.
My H was so lucky that he didn’t go through the distress and just slept away for about 4 days but we all knew that the time had come.
On the last day I sat and held his hand for several hours and as someone upthread said I told him how much I loved him and “gave him permission “ to let go and he did.
It was so peaceful, I will be forever grateful.
I hope you and your family are able to fully support each other in your grieving for the man he was and realise you will always have the love you have now.
That never dies.

BlueSapphire Sat 25-Jan-20 12:13:10

So sorry Luckygirl, went through similar with my DH and just know how dreadful those last days are. Thinking of you and sending flowers and hugs.

Caramac Sat 25-Jan-20 12:22:46

What a heartbreaking place you are in, I’ve not experienced this but would say any thoughts to end your DH’s suffering are a sign of your love for him. I can only send wishes for you both and hope a peaceful end is timely.
FiL is mentally well but physically frail and now housebound. Every day he tells my DH , the only person he will allow to care for him, that he wants to die. So difficult for them both

GrannyGravy13 Sat 25-Jan-20 12:26:23

So sorry flowers

Hetty58 Sat 25-Jan-20 12:33:01

After an unexpected extra three days, it was a nurse that told me about 'permission'. 'He feels that it's wrong to leave you' she said. I was only 42 and the kids were 7, 10, 15 and 17. When I'd reassured him, he let go in a few minutes.

Sar53 Sat 25-Jan-20 13:32:35

Thinking of you flowers xx

BlueSky Sat 25-Jan-20 17:33:54

When my mum in law recently passed away, we were with her round the clock. She did so while we stepped out of the room for a quick coffee. The nurses told us that this happens quite often, they don't seem to want to upset you.

lemongrove Sat 25-Jan-20 17:40:31

Luckygirl just want to add my good wishes to you.You have had such a difficult time for the last year or so, even moving house, this is such a heartbreaking situation.flowers
You will know what to do, whatever your DH would have wanted.

Greenfinch Sat 25-Jan-20 17:57:19

I send my heartfelt best wishes to you too Luckygirl

grannyactivist Sat 25-Jan-20 18:23:43

Adding my sympathies too Lucky, at such a difficult time for you and your family. When the end comes there will no doubt be a mixture of relief and sorrow, but, hopefully, also the assurance that you did all that could be asked or expected of you.

One note of caution, even when death is expected it is still often accompanied by shock. Glad you have your family alongside to shore you up. flowers

M0nica Sat 25-Jan-20 19:02:36

All my sympathies Luckygirl. It is such a terrible place to be and this whole year and more has been so difficult for you.

I had this dilemma with my father, dying slowly, as breathing became more and more of a struggle. The last three weeks I sometime used to think that I wanted to put a pillow over his face and bring his sufferings to an end.

Bluesky, at the end I had exactly the same experience as you - and the nurses said the same thing

Kalu Sat 25-Jan-20 19:27:46

Just come in to say I hope you are getting through the day as well as you can lucky. Much love to you and your family.

BlueSky Sat 25-Jan-20 19:42:26

Oh M0nica...

Jane10 Sat 25-Jan-20 19:49:21

Luckygirl- very best wishes to you and the family at this painful time. You really did your very best for him.
M0nica andBlueSky I have had similar experiences. Both times it was like the individuals concerned said goodbye and told us to go home for a rest. We did and they slipped away in our absence.