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UTI not going away! Help

(86 Posts)
MsBee Mon 15-Jul-24 13:28:46

I got a uti 6 weeks ago and since then I have been on 3 day courses of antibiotics, 7 day courses and I am now at my wits end. Just finishing a 7 day course and they said they are extending it for another 7 days (nitrofurontion) but I’ve got worse since I started it so worried it’s not working or the bug is resistant to antibiotics. Anyone else had this bother with a uti. I feel like my life is consumed by it. Any suggestions or knowledge about long-standing utis welcome.

Sparklefizz Mon 15-Jul-24 13:37:44

After 3 courses of antibiotics years ago, a friend suggested D-Mannose. I ordered some of that and it got rid of it. Since then I always keep some D-Mannose in the house to start if I have the slightest twinge.

Since then I've been clear for 14 years! The best D-Mannose is Waterfall brand I've found.

Oreo Mon 15-Jul-24 13:39:28

I just stop all drinks other than water until it clears up.

MsBee Mon 15-Jul-24 13:41:00

Thanks! Where can you buy waterfall brand and do you know if you can take with antibiotics or do I need to wait until the antibiotics are finished? smile

dalrymple23 Mon 15-Jul-24 13:48:38

Cranberry juice apparently. It used to be taken by all my elderly clients and they swore by it.

keepingquiet Mon 15-Jul-24 13:57:03

Cranberry juice used to be an aid for cystitis, which is more specific than a UTI. Worth a try though. You have my sympathy. Hope it clears up for you soon.

nanaK54 Mon 15-Jul-24 14:00:23

Please don't limit your fluid intake, you need to drink as much as you can to flush your system.
I have taken D mannose for years and it really helps, easily purchased from Amazon or Health food shops.
I do not have any caffeine at all which is also helpful, I drink only decaff tea and coffee...
Have you started any new medication recently?
Amlodopine, prescribed for high blood pressure played havoc with my bladder.

LizzieDrip Mon 15-Jul-24 14:03:34

D-Mannose is what I swear but (Waterfall is just a brand name). You can buy D-Mannose on Amazon but, if you don’t want to wait, you can buy it at Holland & Barrett’s or maybe Boots.

Regarding taking it alongside antibiotics, I’m afraid I don’t know about that. It might be worth asking a pharmacist for advice.

nanaK54 Mon 15-Jul-24 14:17:12

As far as I know it's fine to take alongside anti-biotics, I certainly have done so

Sparklefizz Mon 15-Jul-24 14:17:23

MsBee

Thanks! Where can you buy waterfall brand and do you know if you can take with antibiotics or do I need to wait until the antibiotics are finished? smile

I buy Waterfall brand D-Mannose online. Amazon used to stock it, or buy direct from Waterfall. I had finished my antibiotics and found that they hadn't worked, so I wasn't taking it alongside them.

Some of the other/cheaper brands of D-Mannose are not as powerful I discovered.

DamaskRose Mon 15-Jul-24 14:25:48

I had an unresponsive UTI for months, the first antibiotic I was given was nitrofurontion which made me very sick. Several more were tried over the course of the four months and eventually it cleared up. I will definitely be purchasing D-mannose just in case, so thankyou for that information.

MsBee Mon 15-Jul-24 14:29:06

Thank you for the advice everyone. I am at my wits end. The gp gives me one antibiotic for 7 days than another one for 7 days. This particular one I am taking just now is one I have had twice before for 7 days each. Just been given another 7 days but I am worse than when I started which makes me wonder if it is working?

nanaK54 Mon 15-Jul-24 14:32:09

MsBee

Thank you for the advice everyone. I am at my wits end. The gp gives me one antibiotic for 7 days than another one for 7 days. This particular one I am taking just now is one I have had twice before for 7 days each. Just been given another 7 days but I am worse than when I started which makes me wonder if it is working?

Have they sent your urine samples to lab?
That would indicate which anti-biotic is needed

crazyH Mon 15-Jul-24 14:33:01

A UTI is a miserable thing. I had if continuously a couple of years ago. A couple of courses of Trimethoprim and lots of Cranberry juice is the answer. And I heard panti-liners can stir things as well. I don’t feel right if I don’t use pantiliners, so I try to change them at least twice a day.

LucyAnna2 Mon 15-Jul-24 14:37:38

Waterfall D-Mannose is very good and they deliver really quickly - usually the next day. Take a high dosage for the first day or Sat, then continue with a maintenance dose. Drink lots of water too.

LucyAnna2 Mon 15-Jul-24 14:46:20

first day or SO

MsBee Mon 15-Jul-24 14:56:49

I think the bug is ecoli in my urine which I have read is the most common one so I thought it would clear within a week or so. Just worried if you have a strain resistant to antibiotics (is that possible?) will you have it for ever?!

petra Mon 15-Jul-24 14:58:22

I get annoyed when Drs say it’s a UTI. This covers a number of infections particularly candida cystitis. If it is candida cystitis you must stop all sugars. That includes fruit.

keepingquiet Mon 15-Jul-24 15:34:10

MsBee

I think the bug is ecoli in my urine which I have read is the most common one so I thought it would clear within a week or so. Just worried if you have a strain resistant to antibiotics (is that possible?) will you have it for ever?!

E coli comes from the bowel.

Sago Mon 15-Jul-24 15:57:05

I have only one fully functioning kidney due to an enormous staghorn kidney stone that started to break up and tiny pieces worked their way through my system and caused an ecoli infection.
Unfortunately the infection spread to my liver, kidneys and appendix, this meant the stone couldn’t be surgically removed or blasted until the infection was under control.
The end result was 9 months of antibiotics/antibacterial drugs, many stents and a blocked urethra.
This led to one kidney being badly damaged.
Eventually I was clear of the infection and the offending stone was surgically removed.
I had a year of severe pain it was truly grim.

I had to take steps to try and avoid infections, the hospital were wonderful and gave me really good advice to try and avoid more UTI’s.

Firstly ecoli does not always come from the bowel, it can be carried within a kidney stone.
Caffeine will irritate the bladder always avoid if you have infection.
Cranberry juice has no proven benefits for UTI’s and can often irritate the bladder therefore exacerbating symptoms.
D-Mannose is an excellent supplement and can be as effective as Nitrofurantion for the treatment of UTI’s.
Always have some urine testing strips handy, you can buy them on Amazon.
It’s worth being able to do a quick test yourself to see if blood/protein is present before contacting a doctor.
If you have pain in the flank or rigours then this is often an indication of kidney infection or stones.

I do hope you get this sorted.

LOUISA1523 Mon 15-Jul-24 17:23:18

Ecoli causes 90% of UTI s Keeping quiet
The worry is the the UTI will become embedded

LOUISA1523 Mon 15-Jul-24 17:25:31

petra

I get annoyed when Drs say it’s a UTI. This covers a number of infections particularly candida cystitis. If it is candida cystitis you must stop all sugars. That includes fruit.

Always ask for your pee to be sent for testing ....I've never had a uti that wasn't ecoli ....but I always ask for sample to be tested anyway ( and start on nitrofuantoi n anyway)

LOUISA1523 Mon 15-Jul-24 17:26:30

MsBee

I think the bug is ecoli in my urine which I have read is the most common one so I thought it would clear within a week or so. Just worried if you have a strain resistant to antibiotics (is that possible?) will you have it for ever?!

Have you had your pee retested OP?

JamesandJon33 Mon 15-Jul-24 17:56:31

MsBee When you get your UTI sorted, ask your GP to prescribe a low dose vaginal HRT. I had your trouble plus a dreadful allergic reaction to anti biotics. The doctor at the hospital made me promise to ask my GP for the prescription. 3 years later not even a hint of a uti.

keepingquiet Mon 15-Jul-24 19:22:47

LOUISA1523

Ecoli causes 90% of UTI s Keeping quiet
The worry is the the UTI will become embedded

Yes but the Ecoli originates in the bowel, just saying. The female anatomy down there makes it easy to transfer bacteria from one place to another.