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I'm so scared

(90 Posts)
Smileless2012 Fri 02-Feb-18 00:11:08

Mr. S. is having surgery next week, a biopsy. He's been having his prostate monitored for, I don't know at least 10 years now.

He had an MRI just before Christmas and they've found a nodule that they're not happy with, hence the biopsy.

I suppose we became complacent, lots of tests but never anything untoward and now this. My head tells me that he'll be OK, if it is anything they've caught it early and he'll be fine. My heart is scared that I might lose him .

We're estranged from our youngest son and only GC. Our DS lives in Oz. His marriage broke up 4 months ago so we haven't said anything about his dad and we wont, unless there's something to say.

We're hugging each other more than we usually do. He keeps buying me yellow roses to cheer me up. Not that I'm letting him know how worried I am. I tell him he'll be fine and I don't let him see me when I cry, when I can hardly breath because I'm so, so afraid.

We've struggled with the loss of our son and GC. We moved 14 months ago and it's been wonderful. Beginning a new chapter in our lives, together. Discovering that there is a life after estrangement, together.

He told me a few weeks ago that he felt as if things were coming to an end. We completed on the sale of our property in Florida yesterday and tonight he told me that neither of us could have managed the sale without the support we give one another. It was a nightmare, the buyers were unbelievably difficult.

I was 16 when we met, 19 when we married; it will be our 38th wedding anniversary this year. He's my whole world, my sun, moon and stars and it's getting harder to wait for the biopsy and the results.

We've had a lovely evening. Out for a meal to celebrate the sale and talking about the things we're going to do, the holidays we plan to have but there's that cloud of uncertainty hanging over us.

We're playing it down with family friends, especially family as we don't want to cause unnecessary alarm and upset. We smile and nod when they say 'don't worry it'll be fine' but I am worried, I'm scared. I haven't told him so and he hasn't told me, but I know he;s scared too.

Smileless2012 Sat 10-Feb-18 20:56:39

No results yet etheltbags; still waiting. Thank you for your good wishes.

Gabrielle8 Sat 10-Feb-18 21:00:44

Oh Smileless how well I know that feeling. I used to call it my ‘clenched fist in my chest’ feeling. We had many emergency trips to A&E, which often resulted in my coming home alone. Like you, I never contacted my son, and felt like I was the last person on earth.

I have no words of advice, because this man is your whole world...and that world is being turned upside down. All I will say is, try to stay in the moment. Don’t let your imagination run away with you. I spent many hours worrying about things that actually never happened...well not until the last time obviously.

I’m sending love and positive thoughts...Rosy.x.

tinaf1 Sat 10-Feb-18 21:12:46

Sorry to hear about this set back Smileless and that your feeling so vulnerable, I read a your posts and I always find them very upbeat and rational despite what your family difficulties, hope things settle down for you and your husband and when you go to get his results everything goes well?

MawBroon Sat 10-Feb-18 21:45:19

A blockage of any sort preventing urination can be excruciating so your DH has my complete sympathy Smileless as do you as witnessing it can be alarming.
I hope you have been shown how to deal with his catheter (or is he still in hospital). It is important not to let the catheter bag get over full as that can also impede urination.
Do try not to worry. Of course these things are always worst at weekends but your District Nurse is frequently your first port of call and can be really helpful.
Good luck and try to keep calm, I am sure it will be OK.

celebgran Sat 10-Feb-18 22:06:10

Smilless that's awful you should have rung me you aren't alone,

What a worry and well done for being so brave you can't be the most squeamish person I am?

Smileless2012 Sat 10-Feb-18 22:07:18

Thanks everyone. They've given him bags and a free flow catheter (I should have known that was the spellingblush)MawBroom that doesn't require a bag. He can open the 'tap' when he wants to go, they said it's preferable to the bags because he can maintain bladder control. He's home and seems to be managing OK and I'm trying not to worry as he seems to have settled at last.

I took in all the info they gave us and it ended up with the male nurse calling me 'nurse .....'smile; he was lovely.

That's just how it feels Rosy "clenched fist in my chest" it feels as if someones clenching their fist around my heart and all sense goes out of the window and emotion takes over. I'll try and 'stay in the moment' and be thankful that he's no longer in pain and is here at home with me.

Thank you tina I've had so much wonderful support from GN and it's been wonderful.

Smileless2012 Sat 10-Feb-18 22:09:36

I thought you were away this weekend C and I didn't want to 'phone anyone while Mr. S. was still up because I knew I'd be weepy and I want to be strong for him.

OMG if you're more squeamish than me, you must be really squeamishsmile.

celebgran Sat 10-Feb-18 22:18:28

Bless you Smilelss have sent you pm we out day tomorrow and away Monday I know we job to keep track of.?
I will have my mobile and don't worry be strange if ybut umweren't tearful.

Gosh catheters sound technical so glad he comfier poor chap give him our love and special hugs to you from us both ❤️Xx

it's horrid feeling wanting support from estranged child and knowing it's not there I can totally relate. Just horrid ns in oz.?❤️Xxx

celebgran Sat 10-Feb-18 22:20:48

Rosie put it so well try stay in here and now and don't jump ahead to stress on what ifs one day at a times xxxx

Smileless2012 Sat 10-Feb-18 22:23:45

I thought I knew how hard it was for you last year C facing major surgery and knowing that your ED knew because Mr. C. had written to her but it only hit me today, how heart breaking it was for you when she didn't get in touch.

Well you're right about that; it's not easy keeping track of you and Mr. C.grin.

celebgran Sat 10-Feb-18 23:17:15

Thanks smilless it kinda made me realise I must t keep hoping for a miracle anymore, but it was a setback to my healing which I don't want for you.

Having said that it could well bring you back together which would be wonderful.
if after sleeping on it you want to let es know I would just se d v short note informing him what's happened or he will be all defensive.

God bless xxxx

nanaK54 Sun 11-Feb-18 07:26:42

Have only opened this thread today, just sending you both my very best wishes flowers

janeainsworth Sun 11-Feb-18 07:37:18

smileless I hope MrS is feeling better by now.
Can I just suggest that if you’re worried about anything, if MrS seems pale or in pain or anything, don’t hesitate to phone the ward he was on, or your GP, for advice.
Sometimes all you need is words of reassurance & the knowledge that you’re doing the right thing, to feel better.
flowers

cornergran Sun 11-Feb-18 09:40:46

Hope Mr S is comfortable this morning and you are less worried. It’s a horrid time for anyone. jane has given good advice, don’t sit fretting if you are concerned, better to get some advice and hopefully reassurance. I’ll be thinking of you both.

Blinko Sun 11-Feb-18 10:02:56

In case it helps at all, I have a friend who has ben living with and managing prostate cancer for nearly six years now. It's one of those that's manageable with drugs and medication, nowadays, I understand.

Hoping for the best for you both flowers

Smileless2012 Sun 11-Feb-18 10:19:39

Thank you. Mr. S. had a better night and is managing very well. I'll do that janeainsworth if I'm at all worried I'll ring the hospital. It's less than 15 minutes away which is a blessing and the staff were all lovely yesterday.

It's such a comfort to know that so many people are thinking of us cornergran.

Your post has helped Blinko, thank you.

Stansgran Sun 11-Feb-18 10:39:58

I've just come across this and really can't think of anything to add that hasn't been said sensibly by everyone else except Bon Courage.

Luckygirl Sun 11-Feb-18 10:46:49

Lots of good luck with these new challenges. flowers

Lazigirl Sun 11-Feb-18 10:57:40

Just seen your post Smileless and really feel for you, very frightening with the bleeding afterwards too. There is some very good advice and support on here. My OH had a biopsy and we were given the result of cancer over the phone. It was truly shocking, and initially felt that this was 'it' and could see no future. How wrong we were. 8 years on he is fine and very low PSA tests. It hadn't spread and he had a prostatectomy (which isn't always done these days) and a catheter for 4 weeks and some urinary incontinence for a few weeks afterwards, so treatment not a bed of roses but worth it in the end. I just wish men were as open to speaking about prostate cancer as women are about breast cancer. We have since had at least 4 friends who have had, and recovered well from prostate cancer, it is in no way a death sentence, but if it was talked about more openly it would be less frightening when men are diagnosed and publicity may increase funding for research and treatment. It is an anxious time for you but hopefully he will recover soon and you will have good news.

Iam64 Sun 11-Feb-18 12:11:17

Sending love and positive thoughts to you and Mr S x

Ambergirl Sun 11-Feb-18 12:13:13

Smileless2012 As others have said. Prostrate problems are common and the fact that this has been monitored and any nodule caught early is a very positive situation. I am sure the other problems you have had with your son and GC in recent years have left with with a gaping hole in your hearts and perhaps a propensity to expect the worst. Sending you positive thoughts for this. Hopefully even if the nodule needs treatment it has been caught nice and early. Treatment and prognosis now is very positive, so try and look forward with positivity, and support each other through this difficult time. Good Luck

celebgran Sun 11-Feb-18 20:44:46

So relieved to, see Mr S had better night smileless and please try keep me posted we awayntomorrow but will have my mobile wifi may not let me log in here.

Sending ❤️ love and gentle hugs to u both xx

tinaf1 Sun 11-Feb-18 23:22:10

Pleased to hear things look brighter today wish you both well ?

crazyH Sun 11-Feb-18 23:36:22

My thoughts are with you and Mr S....hope all goes well xx

Christinefrance Mon 12-Feb-18 08:27:18

Good luck to both of you smileless hope things improve soon. Concentrate on your husband and put other concerns out of your mind for the time being. You need to deal with the here and now, family problems can wait. flowers