UPDATE
Better news today is that the new treatment seems to be having an effect. ? ??
The pattern seems to be that it’s at nighttime that our granddaughter gets into real difficulties, but last night, although she did become hypoxic (not enough oxygen), it was not as bad as on other occasions.
The ICU is so busy they’ve had to put extra beds in and so our daughter says that if our granddaughter improves she’ll be moved back to a side ward again. On the one hand it’s really traumatic for her in the ICU, so I’d love for her to be well enough to be moved, but I really want her to stay there if she’s likely to need the extra facilities. Aaargh!
I can’t quite get my head around the fact that it’s possible for our granddaughter to be able to leave the ICU when she literally can’t breathe for herself, not even for a minute. I don’t want to ask my daughter too many questions as she’s ‘mummy’ and not an ICU nurse in this situation, but it’s a constant concern.