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AIBU

AIBU to be so up and down?

(98 Posts)
EllaKeat Wed 11-Dec-19 17:39:31

I had breast cancer 10 years ago. I had surgery, chemo and radiotherapy.
I had all of my lymph nodes tested - 23/24 affected.
Then I had BC on the other breast. I had surgery and reconstruction on both breasts, then another bout of chemo.
Then I had ovarian cancer and had an oopherectomy.
I was told at that point that I was stage 4.
For six/seven years I have been symptom free.
Now I am not.

I have been told that my cancer has spread to my bones (spine), and more frighteningly, my liver.

Oncologist is offering pain relief, as and when necessary. There is nothing more to be done.

I was told this yesterday, but already knew it, I just knew something was not right.

I feel fabulous. Absolutely nothing wrong with me. I have had donkey day today, mucking out, sorting donkeys, llamas, goats, chickens and rabbits. All as normal.

Then it hits. I wont be here next Christmas. I dont know how to feel.
No one can tell me. Obviously, they are dead. (Apologies for the black humour).
80% of the time I am me, normal.
20% of the time I am a quivering wreck.

I look at my children, my grandchildren, and think I will not be a part of their story soon.

I actually cope very well. Its just that when it hits, it hits hard.

Apologies to you all, I KNOW there is nothing you can say to make it better, I just needed to let it out.

Nannylovesshopping Wed 11-Dec-19 19:46:15

How hard it is to be so brave and you certainly are, your family will never forget you, your love is in their hearts, love and strength to you?

Sar53 Wed 11-Dec-19 19:58:26

EllaKeat thank you for sharing your devastating news with us, how very brave you are. I'm so very sorry and send love and hugs and flowersxxx

Grammaretto Wed 11-Dec-19 20:03:05

So sorry to hear that you have to live with this! I did wonder when you posted previously that all was not well.
Huge ((hugs)) I am so glad you are feeling well now.
No one can say for certain how long any of us has left.

DH has stage 4 cancer but so far he is well and enjoying life and making plans.

When he was first diagnosed I said that I would stop all my activities and devote myself more to him. "Why?" he asked, "I'm not stopping anything so why should you".
He hasn't.

emmasnan Wed 11-Dec-19 20:08:44

I'm so very sorry. Your children and grandchildren will always have good memories of you.

Urmstongran Wed 11-Dec-19 21:01:09

You are truly one brave woman EllaKeat. Your post has touched me.

Sending you a huge virtual hug. I think you sound pretty amazing.
?

inkcog Wed 11-Dec-19 21:06:45

I would humbly and respectfully suggest you find the very very best professionals to talk to about this most difficult situation.

Luckygirl Wed 11-Dec-19 21:08:52

More love and hugs here. You will always be a part of your children and GCs' lives - not just as memories, but as the essence of who you are, which will be part of them.

Well done for setting to with the donkeys on such a difficult day for you.

I remember when I worked in hospitals a lady in similar circumstances to yours said to me something along the lines of: "I get fed up with people asking me what I am going to do - obviously I am going to live till I die as we all do." It seemed a sound philosophy.

flowers

Luckygirl Wed 11-Dec-19 21:10:13

Oh - and YANBU.

Alygran Wed 11-Dec-19 21:36:09

Ella my thoughts are with you. sunshine for your rainy days.

SueDonim Wed 11-Dec-19 21:38:26

*I’m sorry you’ve had this news, EllaKeat. flowers You sound like a wonderful person and you’ll be giving your family some lovely memories. Don’t forget, too, that doctors’ predictions are just that, a prediction, and they can be wildly inaccurate.

Callistemon Wed 11-Dec-19 21:50:53

EllaKeat
Well done for carrying on caring for the animals and for your fortitude and humour.
I hope you can make some lovely memories for your damily.

There will always be someone on here to talk to when you need a friendly chat

flowers

Callistemon Wed 11-Dec-19 21:52:09

family

Sorry!

NanaandGrampy Wed 11-Dec-19 22:00:05

Ellakeat , the app is called Recordmenow and the lady who created it did so for exactly the situation you find yourself in .

It’s very easy to use . I hope you find it if use x

Grandmashe43 Wed 11-Dec-19 22:00:42

Peace and love to youx

morethan2 Wed 11-Dec-19 22:10:27

I am so sorry. I hope our story can give you hope. Our DiL had the same diagnosis three years ago, she still with us. Last year it spread to her brain we were told it would be her last Christmas, she is still with us. A few months ago we were told once again to prepare ourselves, she is still with us. Is it the treatment keeping her going? Is the prayers and positive thoughts from friends, family and gransnetters, is it the hope? And the will to live? I don’t know I just want to say don’t give up and live every day to the full. Along with my DiL I will keep you in my thoughts.

BlueSapphire Wed 11-Dec-19 22:14:47

I am so sorry, no words can make it better. I would be feeling the same. Sending hugs. And you will always be part of your family's life. They will remember you with much love and you will always be in their hearts.

BradfordLass72 Thu 12-Dec-19 01:41:48

I echo the ideas of leaving something: recorded messages and videos, letters, photos and love.

Maybe your children or grandchildren can be part of this - it may help them too to make a Living Memory with you.

When my Mum received her final prognosis, we talked a lot and her biggest regret was not seeing my younger son grow up (the elder was already in the army).

There is never a good time to die; no one ever wants to leave behind their beloved grand-children.

I don't know how old yours are, but almost certainly you will be able to see in them even now, the seeds of the adults they will become.
That seemed to comfort my mother and indeed my boy was as kind and caring then, as he is now at 40.

Stay with us as long as you feel able EllaKeat because remote as we are, it doesn't stop us from genuinely caring about you and sending good thoughts, prayers and much love. flowers

Gin and chocolate sound exactly the right medicine grin

CocoPops Thu 12-Dec-19 02:58:49

No of course you are not being unreasonable to feel so up and down. May I suggest you contact the McMillian nursing service. McMillian nurses are very knowledgable and able to provide emotional and physical support for people in your position.
They have a support line on 0808-808-00-00 for you to talk 8am- 8pm 7 days a week and hopefully will put you in touch with a McMillian nurse in your area who can visit you at home.

cornergran Thu 12-Dec-19 04:54:02

You’re a courageous and inspirational woman EllaKeat. I’m so sorry to hear your news but so pleased you’re feeling physically strong just now. Of course continue to do everything you can, enjoy what you do. Make memories for your grandchildren, your love will always be with them. There’s a lot to process, why wouldn’t you be up and down? Never think you’re being unreasonable. Sending love and a hug.

PageTurner Thu 12-Dec-19 05:35:50

Dear EllaKeat
I'm so sorry to hear of your diagnosis.
At times it must be unbearable to think about it.
You are very brave and I admire your spirit.
? And a big hug to you.

mumofmadboys Thu 12-Dec-19 07:52:50

I agree you are very brave and making the best of a difficult situation. You will always be a part of your family's life. Concentrate on living each day well. Take care

Hetty58 Thu 12-Dec-19 08:11:29

EllaKeat, you've been through so much that most of us can only imagine how tough it's been. You are still here, though, and feeling well, which is wonderful.

You know that you won't have long to live. That's the only difference between you and me this morning.

I don't know how long I have - but then, any one of us could die at any time. We tend to ignore it, never face up to it and act as if we have all the time in the world.

Each day is very precious, should be appreciated and never wasted. Carry on with your normal (80 percent) days and grab all the happiness you can!

Yiayia4 Thu 12-Dec-19 08:22:38

Bless you Ella xx

Nansnet Thu 12-Dec-19 09:04:18

EllaKeat, I really feel for you, especially as I witnessed both my mother, and a very dear friend of mine go through the same thing. I remember my friend telling me that none of us know how long we have on this earth, and instead of worrying about when our lives will end, we should all make an effort to make the most of each day that we do have. Which is exactly what she did.

Whilst she was well enough, she made memories ... lots and lots of memories, with all her loved ones and friends, so she will always be a part of their lives. So many of us waste so much of our precious time, and before we know it, it's too late.

Cry and scream whenever you feel the need to, and don't try to be brave for the sake of others, take strength from everyone around you. And on your good days, enjoy life to the full. We're all on borrowed time, so make the most of it whilst you can. And whilst you're feeling fabulous, have a fabulous Christmas with your loved ones, and make it one that everyone will always remember! xxx

EllaKeat52DurhamDonkeyLover Thu 12-Dec-19 21:38:36

I just wanted to thank you all for your lovely messages ?

I really am not brave though. Brave is when you choose to do something difficult or dangerous, so it feels wrong to claim that one!

I am actually okay. I thinks its quite normal to have those bolts of shock when you suddenly remember again, so having a wobble is acceptable 5o me and I really dont think I need to speak to anyone about it at the moment.

I am taking it slow and steady at the moment, just plodding along as usual. I am in great danger of running wild at the moment - booking huge lodges for family get togethers etc., so trying 5o just steady the ship until the New Year?

I feel wonderfully healthy. Which is a bummer in a lot of respects. It makes it harder to actually believe the experts.

I'll bloody outlive the lot of them?