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Care & carers

Care home have asked Mum to leave

(93 Posts)
Nana3 Sat 05-Mar-16 14:25:37

Mum went into a residential care home in October, first for respite then permanently. They knew she had Alzheimer's. In November Dad died, grief caused mum to stop speaking, eating and she lost her mobility. She was prescribed an antidepressant and is now very slightly better. Last week the manager told me that they could no longer meet her needs because of her lack of cooperation and the need to hoist her. She has been reassessed but doesn't need nursing care. I have been to see a few homes today and they are also not able to take people with mobility problems although I was told as their residents deteriorate they don't ask them to leave. Mum is 92. I am struggling, I feel out of control of the situation, not sleeping, worrying. Social services say they will help me find a place which is something.
I feel mum is having a very shabby deal, what do you think?

Nana3 Wed 09-Mar-16 09:50:13

Your mil's situation was similar to my Mum 's current one granjura. Thanks for explaining. I'm feeling more understanding of the care home's position, but I'm no nearer finding a place for her.
I decided last October that I couldn't manage at home with Mum, it would be a 24 hour a day caring role and my husband is still working. I help with GC Wednesday, Friday and Saturday every week. Mum had a wonderful retirement and really enjoyed life until her late 80's.

Lyndyn Wed 09-Mar-16 20:48:37

My mother needed total 100% care, like a baby, well before nursing care was funded! She had a catastrophic stroke, and lived. But the local (within walking distance of our home) 'high dependency nursing' care home refused to take her as she was too high dependency! I felt it was another bereavement!
The nursing home 'we' then found was wonderful and she was there for 8+ years. Then they sold the house n grounds for housing, true to comment good high qualified weekend staffing had been very hard to source. Mum was immensely distressed by the physical move, and I was not allowed to travel in the ambulance with her. She moved to her new nursing home on a Tuesday and died on the Thursday. It's all about money ie profit margins now.

Elrel Wed 09-Mar-16 20:57:39

Lyndyn, so sad for you.

annsixty Wed 09-Mar-16 21:05:42

For anyone who considers caring for a parent with a high level of dementia I can only say think again. I care for an H whose dementia is at a relatively early stage. A partner who one loves is a very different type of commitment to a parent when one has other priorities like partner and children. You should not be torn between the two. You have your own life to live it.live it without guilt and visit your parent as much ax you are able. That is what they would want.

Nana3 Wed 09-Mar-16 22:53:02

Lyndyn so sorry, such a sad story, it should never happen. The coming move for my Mum has me very worried.
Thank you annsixty you've made me feel better, reassured. I want to cry though.

kittylester Thu 10-Mar-16 07:20:04

Good post ann.

billiegirl Thu 10-Mar-16 07:31:41

I read the posts on this subject yesterday and during the evening received a message from a friend asking for my help in starting an appeal process. Her aunt, who has Alzheimers and is fully funded for her care by the Social Services, had been the subject of a review by them and they have pulled the funding because it seems her aunts condition has "improved". Apart from the fact that she's totally incontinent, aggressive to those she doesn't know and now doesn't know my friend or her (aunts) brother from Adam, the only improvement is that she now sees a GP regularly and her blood pressure is under control. Unfortunately the hardest part is going to be proving any of this as the home (£1500 per week for dementia care and slated in a CQC report) have been in my opinion negligent in their document and care record keeping and the Social Services attitude is that if it's not written down it didn't happen!
I really, really don't want to get old.

f77ms Thu 10-Mar-16 10:04:37

I have no experience of care homes but what would happen if you couldn't find one to take her ? What happens to people who have no relatives ? I presume they couldn't discharge someone in these circumstances .
I worked in a psychiatric hospital in the 70`s and 80`s and there were wards of patients with Dementia but since they all closed down it seems the gravy train began . £1500 a week should cover any amount of care !
Thank god I was able to look after my Mum in my home , she did get attendance allowance which was about £200 a month which she gave to me but this meant that they stopped my pension credit !!!

Angela1961 Thu 10-Mar-16 10:05:10

I have a friend who's mother has now gone into a dementia care home as her need outweighed what the family could provide. She has an aggressive form and is only in her early 60s. She was an avid reader but stopped being able to do this, not even being able to engage with picture books. Sadly she seems to have also lost her sight recently as well. The home has a person that is employed to ' enrich ' the residents lives. Getting a craft going, having a singsong etc. My friend found out that the woman gets less than £50.00 a month for funds to do this. Sad.

Elrel Thu 10-Mar-16 10:24:54

I have no personal experience of the Alzheimers' Society but someone I know became involved because her husband developed dementia. They have local groups in England, Wales and NI. I'm unsure about Scotland

Alzheimers' Society
Devonshire House
58 St Katharine's Way
London
E1W 1LB

020 7423 3500
[email protected]

National Dementia Helpline: 0330 333 0804

Elrel Thu 10-Mar-16 10:30:33

England, Wales and NI for the Alzheimers' local groups.

radicalnan Thu 10-Mar-16 10:37:21

If people need nursing care then the NHS should be funding it through continuing care, so often people are fooled into selling their homes and self funding.

Self funders fare worse than people who are social services or NHS funded because their is no one to advocate for them.

Make sure you only have to pay what you need to.

NannyVL Thu 10-Mar-16 10:38:40

my mum lived in what I thought was a loving caring home, that coped with Dementia patients but not immobility, at 92 following a fall in the home, broke her hip, care home would not accept her back , said they didn't have the facilities, she died in a hospital ward, surrounded by strangers, very sad

Carolynswalsh Thu 10-Mar-16 10:54:26

Try consulting your local office of Age UK,they are excellent at telling you your rights and what can be done.They supported a friend to win backdated funds when she had been denied by the home and the council.

stillhere Thu 10-Mar-16 13:04:17

A friend's mother was accepted in a care home, even though she has dementia, but the agreement is that my friend has to go in every morning for a few hours to help out, as her presence calms her at a time of day when her mother seems to feel most frustrated. She too has become bedridden, and gets very annoyed and angry, the staff aren't trained to deal with residents with multiple problems. My friend says she would rather be there calming her mother and helping out, than potentially having her slapped by a frustrated and exhausted staff member. She could move her, but visited the dementia unit and thought her mother would be terrified, as she still has moments of lucidity. She is pressured every few months to sell the house, but is living in it so that she can visit, her own life many miles away is on hold and the waiting list for places in her area is years long - her own house is completely unsuitable to care for her mother, she tried it for six months. My own mother is ill and rapidly becoming unable to get around, I really worry in anticipation, hearing all the stories of how hard it is to get help.

AnnieGran Thu 10-Mar-16 13:56:50

I cannot read all these heartbreaking posts. This is our own future we are discussing. What is the point of improved healthcare and longer life if this is what we have in front of us?

I looked after my mother in her last illness, lasting 3 years, because she begged me not to "Put me in a home" and I couldn't do it. She was so tiny and helpless. It made me very ill with stress and exhaustion and my own doctor advised me to give up on her. It took me a couple of years to recover.

She died in hospital just when she was about to be moved into one of the dreaded 'homes' as we call them, although I didn't see any establishments anything like my idea of a home.

The older amongst us Grans must all be living in dread.

granjura Thu 10-Mar-16 15:14:25

AnnieG:

What is the point of improved healthcare and longer life ....

as long as you can enjoy it, even in small ways. But for ME and me personally- beyond that stage I don't want it, sorry- there is indeed no point- Sorry if that offends anyone- but it is my deeply felt opinion and I would NEVER EVER NEVER want to impose this on my children and loved ones, beyond a certainly point... as there is NO point.

This is not ageism- it's just human common sense.

Sillyoldfool Thu 10-Mar-16 17:04:30

Agree totally Granjura, but options are limited. A trip to Switzerland? Tricky to get the timing right & any other intervention by third parties is illegal. My beloved horse and dog will have a better end of life if they need it.

nanaK54 Thu 10-Mar-16 17:05:06

Such heartbreaking posts.....
My mum spent the last nine months of her life in a nursing home, she had lost all mobility following a fall.
Self funding for her as she didn't meet the criteria for help - which was crazy really as she needed 24 hour nursing care.
Nana3 I really hope things get sorted out for your mum - sending you a huge virtual hug

annifrance Thu 10-Mar-16 18:31:06

Granjura - yes, yes, yes.

SueDoku Thu 10-Mar-16 20:16:29

I can only echo the wonderful Terry Pratchett - My life. My death. My choice. confused

shirleyhick Thu 10-Mar-16 21:25:30

How awful for both you and your mom I think it is disgusting. I did not realise how much of a problem this is till I read yours and others posts, something really needs to be done. I hope you get some where sorted soon. Please keep us all updated.

Babyboomer Thu 10-Mar-16 22:01:50

This is so tragic. My mother-in-law ended up in hospital because she became too much for her care home to cope with, but died before she could be transferred on. I'd hate to be in her position, but the trouble with assisted suicide is that I, and probably many others, would not want to take this step if I didn't have dementia, and if I did have it I would not be able to give informed consent. I am leaving an advanced directive that if I have a life-threatening illness I do not want to receive life-saving treatment if I have dementia, but I'm not sure how much legal force these directives have. Some people would argue that the person who made the directive is not really the same person who would receive, or fail to receive, treatment.

jogginggirl Thu 10-Mar-16 22:29:20

Thank you for your post annsixty sending flowers and ((((hugs)))) xx

durhamjen Thu 10-Mar-16 23:45:18

What lifesaving treatment have you stipulated, Babyboomer?

You can refuse food and drink as well as medication. They have legal force.
Two doctors have to agree.